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Understanding ADLs and IADLs: Keys to Pennsylvania’s Medicaid HCBS Programs

Pennsylvania offers Medicaid waiver programs under the Community HealthChoices (CHC) umbrella and the Pennsylvania Department of Aging (PDA) Waiver (often referred to as the PA Council on Aging Waiver). These programs help older adults and individuals with physical disabilities remain in their homes or community settings instead of entering nursing facilities. CHC and the PDA Waiver provide long-term services and supports (LTSS) based on assessed functional needs, emphasizing assistance with ADLs and IADLs. Covered services may include personal care assistance, adult day services, home-delivered meals, transportation, home modifications, assistive technology, and respite care for family caregivers. In addition, Pennsylvania’s CHC Waiver offers Participant-Directed Services that allow participants to hire and manage their own caregivers, including family members. To qualify, applicants must be Medicaid-eligible, at least 60 years old (for PDA Waiver) or 21+ (for CHC), and require a nursing facility level of care as determined through a standardized functional assessment of ADLs/IADLs. In this article, we explain what Activities of Daily Living (ADLs) and Instrumental Activities of Daily Living (IADLs) are and how needing help with these tasks is central to qualifying for Pennsylvania’s Medicaid waivers like CHC and the PDA Waiver.

What Are ADLs (Activities of Daily Living)?

Activities of Daily Living (ADLs) are fundamental self-care tasks that a person must perform daily to maintain independence. Difficulty with ADLs often signals a need for supportive services. Core ADLs include:

  • Mobility (Ambulating/Transferring): Safely walking, getting up from a chair, or transferring from a bed to a wheelchair.
  • Dressing: Selecting and putting on appropriate clothing (including handling fasteners) without assistance.
  • Eating: Feeding oneself—using utensils to get food from a plate to the mouth and consuming it.
  • Personal Hygiene: Bathing or showering and performing grooming activities like shaving, brushing teeth, and combing hair on one’s own.
  • Toileting (Continence): Independently using the toilet—getting to the toilet, transferring on and off, and cleaning oneself afterward.

When someone can no longer perform several ADLs without help, it indicates that ongoing care or support is likely needed.

What Are IADLs (Instrumental Activities of Daily Living)?

Instrumental Activities of Daily Living (IADLs) are more complex tasks that allow a person to live independently in the community. While not necessarily performed daily, they are essential for managing one’s household and life. Key IADLs include:

  • Shopping for Essentials: The ability to shop for groceries, pick up prescriptions, or purchase clothing and other necessities.
  • Meal Preparation: Planning and cooking meals—gathering ingredients and safely using kitchen appliances.
  • Housekeeping: Keeping the home clean and livable tasks like cleaning, laundry, and taking out the trash.
  • Money Management: Handling finances, such as paying bills on time, managing bank accounts, and budgeting.
  • Transportation: Getting around or arranging transportation—driving oneself or using public transit or rides to run errands and attend appointments.
  • Medication Management: Managing and taking medications properly remembering to take the correct medicines at scheduled times and refilling prescriptions.
  • Communication: Using the phone or computer to communicate—looking up phone numbers, making calls, sending emails, and staying in touch with others.

Trouble with IADLs is often one of the first signs that someone needs more support, even if basic ADLs are unaffected.

Why ADLs and IADLs Matter for Medicaid Waiver Eligibility

In Pennsylvania, needing help with ADLs and IADLs is a central eligibility criterion for the CHC and PDA Waiver programs. These waivers serve individuals who would otherwise qualify for nursing facility care but prefer to remain in their own homes or community settings. Eligibility is determined through both financial and functional assessments. The functional assessment evaluates whether an individual requires hands-on assistance with ADLs and/or significant help with IADLs, thereby meeting a “nursing facility level of care.” Pennsylvania uses standardized tools—often the Pennsylvania Long‐Term Care Assessment System (PaLTAS) or the Minimum Data Set‐Home Care (MDS‐HC)—to score independence in ADLs and IADLs.

During the functional evaluation, an assessor reviews abilities such as transferring from bed to chair, walking safely, eating, toileting, meal preparation, housekeeping, medication management, and managing money. Cognitive issues—such as memory problems due to dementia—are also considered since they impact daily functioning. If an individual cannot perform multiple ADLs without assistance or has significant deficits in IADLs, they are likely to meet the level-of-care requirement and become eligible for waiver services.

Community HealthChoices (CHC) Waiver

Community HealthChoices (CHC) is Pennsylvania’s comprehensive HCBS waiver program for individuals aged 21 and older who require a nursing facility level of care. Administered by the Office of Long-Term Living (OLTL), CHC is a managed care program that combines physical health, long-term services and supports, and pharmacy benefits under a single plan (with behavioral health carved out). To qualify for CHC:

  • Be age 21 or older.
  • Meet Medicaid financial eligibility guidelines.
  • Require a nursing facility level of care (confirmed through functional assessment).
  • Live in a setting that meets HCBS requirements (e.g., home, apartment, assisted living).
  • Be a Pennsylvania resident.

Once enrolled, participants receive a comprehensive package of services tailored to their needs. Covered services may include personal assistance, home-delivered meals, adult day services, behavioral support, professional nursing, home modifications, assistive technology, transportation, and respite care. CHC also offers Participant-Directed Services, allowing participants to recruit, hire, train, and supervise their own caregivers—often family members—to assist with ADLs (bathing, dressing, toileting) and IADLs (meal preparation, medication reminders).

PDA Waiver (Council on Aging Waiver)

The Pennsylvania Department of Aging (PDA) Waiver, also called the Council on Aging Waiver, serves seniors aged 60 and over who require nursing facility level of care but choose to remain at home or in other community-based settings like domiciliary care homes. To qualify:

  • Be age 60 or older.
  • Meet Medicaid financial eligibility requirements.
  • Be assessed as requiring nursing facility level of care (through the functional assessment).
  • Live in a qualifying community setting.

Covered services under the PDA Waiver may include personal care assistance, home-delivered meals, homemaker services, personal emergency response systems, respite care, adult day services, minor home modifications, and transportation. Like CHC, the PDA Waiver emphasizes managing ADL and IADL needs to keep participants safely in their homes.

Participant-Directed Services

Both CHC and the PDA Waiver offer Participant-Directed Services, which empower participants to choose and manage their own caregivers, including family members, friends, or neighbors. Under this model, participants develop a service plan with guidance from a care coordinator, set schedules, and handle payroll tasks. This flexibility helps ensure that personal care and IADL support align with participants’ preferences and routines.

Signs That Your Loved One May Qualify

Below are practical indicators that someone may be eligible for Pennsylvania’s CHC or PDA Waiver due to difficulty with ADLs and IADLs:

  • Trouble with Personal Care: Skipping showers, unkempt hair, or wearing dirty clothes may indicate difficulties with bathing and dressing (ADLs).
  • Malnutrition or Weight Loss: An empty fridge or significant weight loss suggests issues with meal prep or feeding oneself (ADLs/IADLs).
  • Mobility Decline and Falls: Struggling to walk without assistance, needing help to stand, or experiencing frequent falls signals reduced mobility (ADL: transferring/ambulating).
  • Medication Errors and Memory Problems: Missing doses, mixing up pills, or forgetting appointments point to challenges with medication management and scheduling (IADLs).
  • Household Neglect: Piles of mail, unpaid bills, or a cluttered home reflect trouble with housekeeping and money management (IADLs).

A combination of needing help with several ADLs—like bathing and toileting—and difficulties with IADLs—such as meal prep and housekeeping—strongly indicates a nursing facility level of care. Document these challenges for the functional assessment to demonstrate eligibility.

We’re Here to Help: Next Steps and Contact Information

Navigating Pennsylvania’s Medicaid waiver programs can be complex, but you don’t have to go it alone. At Avondale Care Group, we specialize in guiding Pennsylvania families through the CHC and PDA Waiver application processes—from the initial functional assessment of ADLs and IADLs to completing paperwork and coordinating services once approved. If you notice your loved one struggling with daily tasks or if a professional has recommended nursing facility care, it may be time to explore CHC or the PDA Waiver. Our compassionate, family-first team ensures your loved one’s needs are met with dignity and respect. Call us or contact us today to learn how to get started with Pennsylvania’s Medicaid waivers for home and community-based services.

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